Tag Archives: autism speech

Autism Strategy, Makaton

10 Ways I Got My Son To Communicate

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When everyone’s children are conversing and talking in sentences, it is extremely disheartening to watch your child sit silent and not utter a sound.

I have been in the situation of my son not talking. Not saying his first word until he was four, a developmental milestone that other children make at around a year old. In our case, my son’s delayed speech was linked to autism. But there are many other reasons for a child not developing speech, and it is best to discuss with the professionals; your health visitor or GP to ensure you get the support your child needs.

However, while you are waiting for answers, there are some things that you can do to start the journey towards communicating with your child.

1. Mimicking

As much as you may want to play a certain game or toy with your child, they may not want to do the same. Similarly, they may not want to play it according to the instructions or the rules as they are printed on the box.

You need to change your outlook on this. Remember that you are finding a way to engage with your child and prompt interest with them. You need to play with what they want, in the way that they play it.

If your child is not interested in toys and prefers jumping around, or spinning, or singing, you need to join them in this game.

Copy what your child does, jump with them, mimic pushing the wheels of a car alongside them, or hide under the blanket with them.

This copying of your child’s actions, will firstly create a sense of interest. They will see you doing something they enjoy and feel a connection to the action, creating engagement.

2. Move Everything Up High

If your child is bringing you items to open or helping themselves to toys they want to play with, they will continue to do this without words or a request. They will not see the need to engage with you to get what they want, therefore not needing to prompt communication or future verbal requests.

So take the key items and move them out of their reach. You will start to feel like your nan who has strange items in strange places, like the rice cakes next to your dinner plates, and a line of cars on the top shelf of the bookcase.

The objective is to get your child to point and request an item. If they are dragging you by the hand, let them lead you to the item, this is the starting point. They now need you to get what they want, and they need to engage with you to get it.

3. Choices

After having moved everything out of your child’s reach, you should see a change in them, either pointing to the object or leading you to what they want. Most of the time you will know exactly what your child wants, and you can now use this to your advantage.

If you child has dragged you to the fridge and you instinctively know that the only thing they want out of the fridge is an apple, choose another item you know they do not want. Now provide them a choice between the Apple and the unwanted item.

You are not looking for a speech or a verbal response at this stage, just an opportunity for them to request the item. This may initially be a split second of eye contact, a point, or a verbal babble. The aim is for them to provide some sort of response before they get their reward, in this example the apple.

Over time as engagement and interaction develops, you can provide choices of two different items which they will want, and see if they can choose between them.

4. Pictures

Never underestimate the power of pictures.

The route to developing speech involves the need to initially associate a spoken word with an object, feeling or instruction. Just by constantly speaking these words, will not necessarily provide the association. This is why it is important to develop engagement before you can expect to generate understanding and eventually speech.

Print out pictures of activities and place these on the wall to allow your child a choice of things to do.

Use pictures to show the sequence of events and where you are going. This will reduce anxiety and provide a method to let your child know what is about to happen, or if they are about to go into the car or a walk to the park.

Pictures can be used in the physical form, with them being laminated and attached to sequence cards or wall charts. Alternatively there are numerous apps which allow you to store pictures digitally or allow you to immediately take photos of different objects and present them to your child on screen.

5. Makaton

Makaton is a fantastic way to enhance understanding and encourage speech. It is easy to learn with the signs being very intuitive and easy to remember.

Using makaton does not stop the development of speech, but enhances the process. It will allow your child to communicate when they have no words, reducing anxiety and frustration.

There are many YouTube sites and videos of the most commonly used signs which can allow you to get started, and if in doubt, turn on CBeebies and let Mr Tumble do the work for you.

6. Crouch Down

In every engagement with your child make sure you are at their eye level. Crouch down to give choices for their request, and allow them to see your face.

When you have the item they have requested, hold it up to the side of your face and repeat its name. Your child may not want to look at you, but holding the wanted item next to your face, will allow your child to see your facial expression and muscle movement out of the corner of their eye, linking it to the pronunciation and sound of the word.

Learning to talk is not just about verbally pronouncing the sound. The facial muscles need to develop and move in the correct way to make the appropriate sounds. The only way to learn how to move your face to produce the correct sound is by seeing others do it. Seeing the multiple facial muscles move and associate them with language, is key to learning how to talk. It is then through practising the movements and hearing the sounds, that speech can be formed.

7. Entering Their World

The world is full of metaphors, and it was something I took time to get my head around. As I mentioned above, it is extremely difficult, but don’t try to inflict your view of how things should be done, or what games and toys your child should play with onto your child.

You will progress a lot quicker and be a lot less frustrated if you use your child’s interests or ways of playing. Once you get the engagement and interaction, you can start to push the boundaries a bit, but you first need to do things their way.

Let your child choose a toy to play with, or if they are most into physical play, use this to interact. My son loves tactile play and numbers, so we would throw him up in the air while counting the number of throws. This evolved to us asking him “How Many?” and he would hold up his fingers requesting the number of throws.

We later used numbers to engage with every day objects, like counting ducks or asking how many rice cakes he wanted.

8. Pausing and Waiting

A few seconds silence can feel like a life time, but that silence can work wonders. When you are waiting for an interaction or prompt from your child, don’t feel like you need to give in after a few seconds. Take your time, sit on the floor and wait.

If you get no response, prompt once again and wait. I have had many occasions of sitting on a cold kitchen floor, asking if my son wanted an Apple or an Orange. Some of those occasions have lasted over half an hour, but I waited and I persevered.

When you eventually get that engagement, then a sound and then a word, all those hours sitting on a cold floor will have been worth it. I also suggest keeping a cushion close at hand if you foresee this as being a frequent occurrence.

9. Use Simple Language

When you are speaking to your child don’t talk in long sentences with large confusing words and multiple pieces of descriptive language. Limit your sentences to a few words, ensuring they are simple and to the point.

Always use sentences in the order of how the activities are going to occur, as this will void confusion about what is about to happen and in what order. For example instead of saying “We are going to the park, so get your shoes on”, change this to simple language with the activities in the order of occurrence, “Shoes then park”.

10. It Takes Time

You will have heard the stories of some children not talking and then talking in sentences, others take a bit longer, and some take years. You need to go through the process with your child. The initial engagement, the understanding, the physical facial development, the babbling and then eventually word formation.

It took my son years, but I never gave up. I continually worked on engagement and understanding. I used pictures and makaton to support communication, and when we got sound, we worked on each syllable of the word until he said it.

Lastly, it is important to note that communication is not only verbal. It is done through interaction, expressions, signs and gestures. We all naturally look to verbal communication as the key element for conversing, but there are a multitude of methods before you even get to the spoken word.

Before my son could talk, I wrote down all the ways he was currently communicating, these included leading me by the hand, pointing, and shouting. Over time these methods of communication increased to requests via the use of pictures, makaton signing, and verbal prompts. He was communicating before he could say his first word, and I could instinctively understand his wants, and needs.

Look to identify all the different methods of communication. Stop focusing just on the verbal, and build up all the other methods, as these will aid the communication and engagement between you and your child.

If you are looking for more details, or step by step instructions on how to implement any strategies used for communication and engagement, have a look on the strategies area on the A&Me home page.

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Autism Life, Autism Shopping, Autism Strategy

A List of Battered Items!

Its busy. There are people! Which in these viral times can make things a little hairy! But I am winging it, I have a plan, which most probably will fizzle into a complete disaster within seconds – but it is always good to try.

“Rhys, shopping list” I say, handing him the laminated card which contains five pictures of items we need to get (although there is always going to be more, especially when you hit the miscellaneous isle of Lidl).

All is going well.

Rhys has decided to forgo his standard exercise routine of shuttle runs up and down the isles, and has resorted to the integrated trolley buggy-board option. With his feet secure on the little step, he holds onto the handle of the trolley, with the shopping list placed in front of him.

“Rhys apples” I say, coming to the first item on the list. I hand the bag to him and he lobs it into the trolley, letting them bruise themselves on landing.

I sigh and make a mental note to do the eggs myself in a few minutes!

Taking Rhys’ hand I help him move the apple picture to the right, off the list. He is not happy about it, and screams at me. It is that high pitch scream that penetrates your bones and lingers in the air. People turn expecting a decapitated body or horror scene. But everything is in its place, just a little boy being asked to move a picture!

The Shopping List

We move on, people stop staring and turn back to their business.

“Rhys, pizza next” I say pointing to the little picture of a pizza. I lift four boxes from the fridge and hand them to him.

He throws them into the trolley, each box landing on top of the bruised apples, on some sort of scattered ensemble. I try to contain my urge to rearrange the trolley items, directing myself back to the task.

Once again I take Rhys’ hand and we move the pizza piece across.

He screams!

We move on.

As we walk I rearrange the trolley, and throw in a few extra items which Rhys’ pictures don’t include. I have kept Rhys’ list simple to ensure I keep his attention. Too many pictures would become overwhelming, especially as this is the first time doing this.

As we round the next isle, Rhys shouts, in a volume for everyone’s enjoyment, “ALL DONE!” I look at the list, he has removed the remaining three items across to the right had side.
“Car” he says.

“No Rhys, we need jam, grapes and ham” I say, placing the three pictures back to left of the card. He is reluctant but lets me compete my task.

As the jam is thrown onto the grapes and topped with a few packs of ham, we walk towards the checkout.

“How are you today?” Asks the cashier.

“Bloody fantastic” I answer.

And I am.

As I push my battered shopping out of the store, I am happy that we have shopped together using a list and a new form of engagement. The other shoppers may have seen things differently, but for me, this was progress.

Maybe next time the screams will be a little less audible, and the apples a little less bruised.

But for now, we will survive.

🍎🍕🍯🍇🍔

What are your shopping trips like?

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Autism Life, Autism Strategy

Counting to Speak

When your child doesn’t speak, all you dream of is to hear their voice. To listen to what they have to say. To have them answer a question you so desperately want to ask.

When Rhys was three he had ten words. Those words were one, two, three, four, five, six, seven, eight, nine and ten.

Numbers were his world, and still are.

He loved flashcards, and would pile them up, holding them in his hand, a support blanket, counting their contents constantly. He would find the fancy educational cards that marketing companies had devised as the best mathematical toolkit for young children. He would find playing cards, and would count the number of spades, hearts, clubs and diamonds. Puzzle pieces would be collected into a pile, or little wooden toy tiles, or coins from a toy till and then shifted through and their totals determined.

I would sit next to him and watch as his finger moved touching each image on a card, his mouth speaking the number as he counted. Once finished he would take the next card from the back of the pack, bring it to the front and start his count once again.

Over time he started to tolerate me counting along with him. It took time, but often he would scream back at my interruption to his game.

I managed over time to allow him to take control of my finger, and instead of him touching each picture on the card, he would guide my hand to each object and count.

I was in. I had opened the door to his world.

Months passed, and cards continued to be Rhys’ passion. But I knew I had to find a way to pull him away from his numbers and introduce more words. Numbers were not going to help him request items or move forward to becoming more independent. Words had to have context and meaning.

By the age of four, I was constantly counting along with him, and decided to find a way to introduce the words for the images on the cards.

“One shoe” I said one day as Rhys placed my finger on the first image of a shoe on his number five card. As he heard my words, which now included something additional from the norm, he kicked off. He screamed but retained my finger on the first shoe image, waiting for the word associated with it, the word “one”. The word all by itself.

But I refused to back down. I repeated “One shoe” and then forced my finger to the second image next to it immediately stating, “Two shoes”. I thought that if he realised that we were still counting, and that the process was still the same, he might accept the change.

Rhys was not happy with the change, but I persevered, and over time he started to realise that we were still counting. My plan started to work.

From that point onwards, I used numbers in everything. When we were in the park, I would crouch down to his level, point and say “Look Rhys, three ducks. One duck, two ducks, three ducks” When I was dragged to the cupboard by my hand for food, I once again would crouch down and say “Rhys, one rice cake or two rice cakes” I would never get a response, but new words were being added to our engagement.

It took time, a long time, years in fact, but it worked. We started to get new words. But more importantly, Rhys’ engagement increased, he was becoming aware of other things in his environment. The numbers interested him and allowed him to count real world objects, outside of his world of flashcards.

We limit the use of flashcards now. They tend to close him off from the world, but yesterday while I was clearing out a drawer, Rhys found some old number puzzle cards which had been hidden months ago. He immediately shuffled through them, like he did years ago, and started to count the images.

This morning he sat next to me and took my finger in the same way he had done a few years ago, and looking at me said, “Count with me” As he placed my finger on the first picture, I said “One”. He paused and without moving my finger he look up at me, waiting.

That’s when I realised that I had done it wrong. I had not counted the little picture of the Seahorse.

“One seahorse” I corrected.

Rhys then moved my finger to the next seahorse, and looked up and me, full eye contact – the strong engagement we had worked on for so many years. “Two seahorses” I responded, his reward for his eye contact.

We have come so far. A game that we played so long ago, came back to show us the progress we have made. And that progress has been gigantic.

Things take time. Find your child’s obsession and use it. Add words to their interest. Use their excitement as a tool for engagement.

And don’t ever give up!

I didn’t!

🃏🃏🃏🃏🃏🃏🃏🃏🃏🃏🃏

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Autism Life

Cut the Plug!

In the 90s me and my sister watched a lot of telly. To the point my father rummaged in his toolbox and with a pair of electrical cutters, cut off the plug.

It definitely stopped our television obsession, for a couple of days at least. But all children learn from their parents actions, and we did the same as my father, by rummaging in the same tool box, and became self-educated in the area of electronics.

The telly was back once again, the cable however did get shorter and shorter over the years!

In the work-home schooling double act, over the past year of complexity, we have resorted to the television as a form of entertainment. But when our autistic son became engossed in a world of electronics and over-stimulation we knew it had to stop.

Nine months ago we banned the used of iPads in our house, after my son would wake us at 3am with a scream of “IPAD!!!!” We had lost him in a world of continuous two second movie clips that he would cycle through over and over again.

The iPad ban was hard. But it was only hard for three days. We then saw amazing things start to happen. He started to engage with us more and the meltdowns were virtually non-exsistent.

We then got into a bad cycle of him watching television episodes of  The Gruffalo  or Peppa Pig on repeat. Something we pushed to the bottom of the prioritisation pile. The need to survive during a pandemic meant that something needed to give, and telly became the babysitter of choice.

Mornings would start at 03:30am with us sending him downstairs to watch telly. It gave us grace to sleep a few extra hours untill the rest of the world woke up. Children’s telly only starts at 6am, so he would have a good two and a half hours of Netflix  to enjoy, often the same show repeated over and over again.

When you start a day in this way it tends to continue. Also we would sub consciously forget that he already had two and a half hours of the bright screen before we had emerged, only to keep it going. When we started to take a step back, we realised he was getting five hours of telly before he had even had breakfast!

Is the recommendation an hour a day?

The turning point was last Monday. A meltdown of epic proportions after a twelve hour television stint. At the time, I felt that I had no option. We both had to work and had been thrown into immediate isolation situation due to a positive contact with the virus. Our fall-back plan had been the telly.

On Tuesday me and my husband woke up and decided on a period of Cold Turkey. No telly! We didn’t get into specifics. There was no end date to the ban. There were no rules. We had both just had enough. We felt it was consuming our lives, and pulling our son into it, disconnecting him from the world.

A connection we had worked so hard to achieve.

Day one meant every toy and puzzle being spread across the floor. A catalogue of entertainment for my son to interact with.

And he did.

He played with toys he hadn’t touched in months. He grabbed his number cards and jumped around the room counting.

He did puzzles and read books. And while I chatted on a conference call we made chocolate cake.

He was loud, but he was learning through play.

He asked for “Televsion” and “Gruffalo” numerous times throughout the day, and searched constantly for the remote. But I held my ground.

On day 2 he brought his cup to me and said “Rhys thirsty” a phrase he has never used. A word of emotion stating his need to drink.

When his sister came home they ran around the foot stool together and he shouted “follow me”,  helping her up when she fell, and then starting the run once again.

He held my hands up to my eyes and said “Hide and seek, Mummy’s turn” and then crawled under the table awaiting my hunt.

By day 3 he was downstairs in the early hour happily playing. The word “television” not uttered.

He jumped on the trampoline in the rain, then rain inside and said “It’s raining” while covering his head with his hands. He has never said this before!

At lunch time, the cat tried to steal his ham sandwich, and he said “Shoo, shoo cat” pushing it away. Engaging with an animal he had no interest in the past.

In the evening I video called my parents to wish my mum a happy birthday. Rhys came to the screen and sang the first line of Happy Birthday. He has never spoken to them via video before. He has never sung happy birthday!

We are now on day 4, and we will continue from here.

I don’t believe we won’t turn the telly back on. I believe there is a place for it. There is a place for all technology in our lives.

There is however a need for balance. We didn’t have that balance a week ago.

I remember the feeling all those years ago when my father cut telly plug off. I remember the feeling of not knowing what to do. Not knowing how to entertain myself without the flashing box.

I know now why it was done. At least these days to implement the same change is not so dramatic, and I can just hide the remote.

Our house is a different place now. Our son is doing so many new things in the space of a few days, engaging with us and saying new words. Maybe it was all there below the surface all along, and the opportunity has allowed him now to share.

I encourage everyone to have a telly-free hour a day. None of our engagement was planned. You don’t need to create activities to replace the telly, just let it evolve itself.

If it is anything like we have experienced, you will agree that it is worth it!

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Autism Strategy, Makaton

Makaton: Good Morning

The pain and illness that has consumed our house for the last forty-eight hours has passed. After a good night’s sleep, I stretch my arms upwards and breathe in the new day.

I pick up my phone and focus on a new goal. At Rhys’ annual review a few days ago, we discussed the use of Makaton and how visual signs are a good method of aiding verbal understanding. Rhys is a visual learner, so I was keen to get started on a way to enhance our communication and develop his understanding.

‘Good Morning’, seamed like a good start to my Makaton journey. I type it into Google and watch a lady demonstrate the sign. It is a simple thumbs up and swoop across the shoulders. “I’ve got this” I say to myself, holding up my thumb and swooping my hand from one shoulder to another, in confirmation of knowing the sign.

I know that Rhys is one step ahead of me in learning Makaton, after his experience of it in school. So I have a positive feeling that this is going to be a good move forward for us.

I can hear the chatter of Rhys next door as he occupies himself with his numbers. He must have been up for about an hour, but is happily entertained, and for once has not pounced on top of me in the commencement of a game of hide and seek.

Walking into his room, I crouch down in front of him. Previous multiple attempts of prompting for a “Good morning” have been semi successful, but never clear or freely spoken. So I am excited to see how this works out.

Looking into Rhys eyes, I get his attention. “Good Morning” I say, holding my thumb up and passing my hand across my chest, in sync with the two words as I speak them.

“Good Morning” replies Rhys in words more clearly than I have ever heard him say. It is spontaneous, with no prompting. A response I would have received from one of my friends hearing my greeting.

What a great start to the morning. It is definitely going to be a good one. I immediately run back to my bedroom and shake awake my husband. I explain the makaton and Rhys’ response.

“What’s the action” he asks. I show him the sign, and he mimicks me, confirming it back to himself.

Kneeling down by Rhys, he looks at him and holding up his thumb says, “Good Morning,” followed with the swoop across his chest.

“Good Morning” says Rhys.

It could have been coincidence, or maybe the Makaton had helped, prompting the clear communication. It doesn’t matter. Rhys communicated back to us without prompting.

I am excited for this new goal. An additional way of building communication with my son.

For anyone wanting to come on the Makaton journey with us, I want to introduce “Makaton with Jessie”. Rhys’ little sister who is joining in with the plan. Because as Jessie puts it, “We are a team!”

I think she is doing a pretty good job. What do you think?

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