Worry vs Wonder

The tears ran down my face. They came from a place of hurt and stress and uncertainty. The result of the feeling of nothingness. A sense of loss. The loss of the life I thought I was going to have. A vision where me, my husband and three kids, would go on crazy day tripsContinue reading “Worry vs Wonder”

When Simple is Hard

“You get the coats, boots and hats ready, and I will do the toilet trips” I said. It was the standard pre-walk preparation we executed every week. As we all bustled in the small cramped hallway at the bottom of the stairs, with coats consuming arms and hats bobbing up and down as the pompomsContinue reading “When Simple is Hard”

A New Place To Sleep

I hear a sound through the darkness. It is quiet at first, then the noise gets a bit louder. I lie still as a rock, not wanting to give away my awake status to the occupant sharing my slumber zone.If I just stay still and pretend I am in some sort of deep sleep –Continue reading “A New Place To Sleep”

Change Your Question!

Three years ago there was one question I asked every person I met, every professional and every support group. It is a question I now get asked all the time, and a question which I see asked on support groups every week. That question is “When did your child start to talk?” The answers areContinue reading “Change Your Question!”

Erase the Word!

I remember sitting on a hard chair, going through the motions, listening to the analysis of my son – the reports and information which had been collated on him. We spoke about his delayed speech, his lack of interaction and his low levels of engagement. It was hard dissecting every level of my child. DocumentingContinue reading “Erase the Word!”

Bail Me Out!

I was put in jail today. Let me start at the beginning… It didn’t go well from the very beginning, as I helped Rhys into the car for our weekly shopping trip. “Here’s the shopping list” I said, handing him his list of pictures in the same way I do every week. But he hadContinue reading “Bail Me Out!”

Spinning to Success!

At Rhys’ three year developmental check, the health visitor sat with an assortment of toys and papers in front of her.“Rhys, can you stack the blocks?” she asked, placing three inch square blocks in front of him. Rhys paid no attention to the lady and casually placed one block on top of the next withContinue reading “Spinning to Success!”

The Communication Pyramid

The one question that parents, with non-verbal children, always ask other parents is, “When did your child start to talk?” I asked this question hundreds of times, to parents in my social circle, to professionals and in user community forums. Each time, I got a range of answers:“Lots of children have speach delays”“His older brotherContinue reading “The Communication Pyramid”

Discipline equals Freedom!

A lot of people will frown on my version of parenting. The version where the mantra “Discipline equals freedom” can be heard being chanted through the hallways. Along with questions of “Do you believe you earned it?” and “What do you think?” Questions I direct at my child, instead of imposing my views on them.Continue reading “Discipline equals Freedom!”

Changing It Up!

I lay out the word puzzles all in a row. The same way I always lay them out. The little wooden letters are scattered underneath, each letter face up, in the way it should be. “Rhys, word puzzles” I say, and with luck he is next to me willing to participate. It took me agesContinue reading “Changing It Up!”