Worry vs Wonder

The tears ran down my face. They came from a place of hurt and stress and uncertainty. The result of the feeling of nothingness. A sense of loss. The loss of the life I thought I was going to have. A vision where me, my husband and three kids, would go on crazy day tripsContinue reading “Worry vs Wonder”

When Simple is Hard

“You get the coats, boots and hats ready, and I will do the toilet trips” I said. It was the standard pre-walk preparation we executed every week. As we all bustled in the small cramped hallway at the bottom of the stairs, with coats consuming arms and hats bobbing up and down as the pompomsContinue reading “When Simple is Hard”

A New Place To Sleep

I hear a sound through the darkness. It is quiet at first, then the noise gets a bit louder. I lie still as a rock, not wanting to give away my awake status to the occupant sharing my slumber zone.If I just stay still and pretend I am in some sort of deep sleep –Continue reading “A New Place To Sleep”

Change Your Question!

Three years ago there was one question I asked every person I met, every professional and every support group. It is a question I now get asked all the time, and a question which I see asked on support groups every week. That question is “When did your child start to talk?” The answers areContinue reading “Change Your Question!”

Erase the Word!

I remember sitting on a hard chair, going through the motions, listening to the analysis of my son – the reports and information which had been collated on him. We spoke about his delayed speech, his lack of interaction and his low levels of engagement. It was hard dissecting every level of my child. DocumentingContinue reading “Erase the Word!”