Tag Archives: autistic

A Cage Fighter or Just a Little Boy?

We are at that stage in my son’s life. That phase where he looks more like a cage fighter than my little blonde haired cutie.

He parts his lips to smile at me, but I am met with a gappy mouth. The loss of his top and bottom two teeth in the space of two weeks, has left him looking like (well if he was ten years older) someone you would not want to meet in a dark alley!

The first tooth loss came and went, with no fuss and was a pretty much a non-event. But things have changed.

Rhys stood this evening and watched his reflection in the window. The massive gap in his teeth reflecting back at him. He continued to babble, phrases from Hey Duggee and Peppa Pig flowing from his mouth in his own little muddled up conversation. He watched his mouth move and the gap flashing back at him from the temporary mirror. As he spoke, the words were interrupted with sobs and gasps for air. Tears flowed down his cheeks, and turning his face to me he whimpered “I’m sad”.

“Why you sad, Rhys?” I asked, trying to take him in my arms, but the comfort wasn’t accepted, and he pulled away, turning to communicate his pain to me with his hands, the words unable to roll off his tongue.

Then placing his fingers to my mouth, he tried to pull at my teeth. His tears rolling further down his face.

“Rhys, teeth will come back” I said, realising his confusion at the change that had happened so quickly. I looked to the table and saw his uneaten dinner. The feeling of biting into his crackers had put him off his food. Lunch lay untouched in the kitchen from earlier, a little boy who couldn’t face the strange sense in his mouth continued looking at me with confusion.

Once Rhys had realised that I understood why he was sad, he let me take him in my arms. He let me cuddle him, while his tears continued to fall.

To my other children the joy of a little fairy bringing a gold coin, in exchange for their teeth, is an event that they will wiggle every second of the day to bring closer. For Rhys, the exchange of money for his pearly whites, is a bizarre concept he is unable to comprehend. To Rhys he has no teeth where there used to be, and that is upsetting.

Rhys’ bottom teeth are coming through, his top gap is just gums. It is a change to the norm, and it will take some time to adapt to.

For now, cuddles are unlimited, while we step through another change in this scary thing called life!

I now just need to go and pull on my fairy wings and grab a bag of chocolate coins. Because chocolate makes everyone a little bit brighter.

🦷🦷🦷🦷🦷🦷🦷🦷🦷

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Top Tips For Toilet Training when your Child is Autistic

Getting your child toilet trained is one of the hardest tasks for any parent, but when your child is autisitc and non-verbal, it provides even greater challenges.

But it can be done, you just need to gather a lot of patience, a support network and realise you are in it for the long haul.

Here are my top tips for toilet training when there is an autistic twist:

  1. Follow the advice and steps from any toilet training search on Google. The general guidance is still the right way to tackle this. This includes reward charts, regular visits to the toilet, positivity and encouragement. Steps 2 to 20 below are the enhancements to the standard process.
  2. Skip the potty and go straight to the toilet. You don’t want your child to finally grasp toilet training and you then have another challenge of ditching the potty. Limiting the number of transitions is key.
  3. Get a toilet seat for comfort and a little step to support your child’s legs and to allow them to get up to the toilet.
  4. Keep to simple language. Use the single word “Toilet” to state what is going to happen. If your child is non-verbal, use the word with the associated Makaton or photo image.
  5. My son would not sit on the toilet. All the guidance on putting them on the toilet morning and night, and getting him use to it etc. didn’t work. His nappy was all he knew and it was working for him, so why change that? We just jumped right in on day 1. It avoided confusion of when to go and although a big change, helped communicate that this was how it was going to be going forward.
  6. Become cleaning experts. Accept that your child is going to have loads of accidents, and this can be for a number of weeks before you even get one sucess in the toilet.
  7. Let your child do whatever they want if they sit on the toilet. Let them watch the iPad while eating a ice-lolly and holding their favourite toy. Remember the main objective, everything else can go out the window.
  8. Get a support network, you can’t do this alone. This includes family, friends, nusery/school and any other professionals. You all need to be following the same plan and sharing what has happened that day to ensure you are working together.
  9. Forget hand washing (I can’t believe I typed that!). But seriously… focus on getting the wees and poos in the toilet. The tasks about pulling their pants up, wiping their own bum, flushing the toilet and washing their hands can come afterwards. Wipe your child’s hands quickly with a wet wipe afterwards and you can also add some antibacterial gel if you want.
  10. Dont force anything. You may want to forcefully put your child on the toilet and shout “PEE!!!!” at them. I’ve been there. After a week or two of battling and struggling, you may find yourself doing this. But don’t. It will set you back weeks. Take a breath and get someone else to step in if you can. Otherwise just walk away and come back calmer.
  11. Run the tap to tempt your child to wee, and make sure you get them to drink loads of liquid.
  12. Get them to blow bubbles when on the toilet – helps with the poos!
  13. Don’t worry about night time. Pull-ups go back on at bedtime, and then pants back on in the morning. Bedtime training will come later.
  14. Give a reward for any small step or just encouragement. We used chocolate buttons. One button before the request (so he knew what he was going to get – he had the taste in his mind) and a second as a reward.
  15. Don’t feel you can’t go out. Get your child to sit on a towel in the car and take loads of changes of clothes, wet wipes and cleaning products. Stick to outdoor areas and make sure you have a pack of anti-bacterial wipes and kitchen towel in your bag – to clean the slide or other equipment in the event of an oops moment.
  16. Once you have your child going to the toilet start thinking about the other steps and add them on slowly, one at a time.
  17. Print out a picture sequence of what is required, and point to the stage you are doing.
  18. The whole process is going to take a long time. Break it up into small tasks. It will all be worth it.
  19. Be creative and use your initiative. I have heard people planting wee trees for their sons to encourage weeing standing up. Use your child’s interests and remember the main objective – getting wees and poos in the toilet.
  20. Don’t give up.
An example picture sequence to use when adding on the additional steps

Has this helped you? Can it help someone else?
Share with your friends or support groups.

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TOTS100 - UK Parent Blogs
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