Autism Choices. The Way to Communication.

Choices.

At the age of two, we had our first speech and language appointment. It was pretty noneventful, but the speech therapist did give us one piece of homework to take away and implement. It was something we would use for many years and still use today. It was to encourage engagement, the first step to communication.

At the time Rhys would take us by the hand to the item he wanted. It was his ultimate way of communicating his needs. This would be the fridge for an apple, the kitchen cupboard for a rice cake, or the telly for his show. Most things were within his reach, so he would often just help himself, gaining his independence just like others his age.

But he didn’t talk. Not a sound. Not a mama or dada, or grunt or squeak. His arm-guiding method met his needs, with no requirement in his world to do anything else. The choices were going to change that, and we set about implementing them straight away.

The instructions were to put everything Rhys asked for, or currently obtained himself, out of his reach. So we moved the crackers, rice cakes and breadsticks into a top cupboard. The apples and oranges were already in the fridge fruit drawer and safely out of his grasp. We became a house with everything in the wrong place. Like when you go to your granny’s and while making a cup of tea, you struggle to find the cake knife, and eventually find it in the top cupboard wedged between the tub of flour and a hairdryer. We were now an old lady’s house with rice cakes alongside the plates and bowls, and raisons amongst the teacups.

We always had this instinctive sense of what Rhys wanted. There was only a handful of food items he ate and other activities were limited. This change was to get interaction between us and Rhys, and encourage him to ask for what he wanted rather than taking us to it.

As soon as we had rearranged the kitchen, we put the strategy into action. After being dragged to the fridge, I bent down to his eye level, fully aware of his non-verbal request for an apple. “Rhys, apple or orange” I said, gesturing each choice with each empty hand. He stood staring passed me towards the wall, no engagement, just the view in his mind that we were at the fridge, the location of his request.

I crouched there for ages that day, down at Rhys’ eye level, my calves burning, my determination strong. I was not waiting for him to perform a miracle, a verbal request for an apple, I was just waiting for a flicker of engagement. There was no magic formula, just time and hard work. It was hard that day, and every day after that. But it happened and was the start of a journey we had embarked on. That day I got a split second of eye contact, and that was all I needed to reward him with his request, an apple.

Over the years, I persevered. The response to choices increased from split seconds of eye flickers to second long moments of engagement, and slowly over time a sound was emitted that slowly formed the letter ‘a’ and later ‘apple’.

As soon as we got that first word we added more words to his request, prompting Rhys each time, and flooding him with praise as we handed over his requested item. Four years later, Rhys will now request with the words “I want orange please Mummy”, although prompting is often still required.

But life has a way of noticing when you have succeeded at a challenge, found a method that works. I walked into the kitchen, today to find my little boy now able to reach those high out of reach places from years ago. He independently opened the fridge, took out an orange, and turned to me with a smile on his face. His non-verbal communication clearly stating “I got it myself – screw you and your choices” 🙂

But I know that cheeky gesture is a form of communication we never had before. He was proud to ‘help himself’, and we needed to reach this point sometime, the time where he is growing up and wanting to do things on his own.

Our little independant boy.

🍏🍎🍊🍎🍏🍊🍎🍏

You can learn all about how to use choices from our strategies.

Autism Futures Are Just a Bounce Away

The group of kids were older. I estimated around fifteen or sixteen years of age. There were about ten to fifteen of them, all with one goal in mind and the determination that no one would stop them.

The tall one shouted, he was loud and vocal, but I didn’t turn my head, I continued to watch.

The wall was in front of them, about eight foot high, leading to a platform where you got a full aerial view of the park. The ultimate superior position a group of teenagers would want to claim as their victory.

I watched.

The trampoline was at the bottom of the wall – a purposely positioned stunt for jumpers who had the skill.

“Lift on three” the boy shouted, and they crouched down and let a girl use their thighs as steps while being lifted to the eight foot height. As she claimed her position on the elevated level, the cheers erupted before the next person took their position.

The teamwork was structured and executed with precision. Each person lifted or bounced up to the platform.

As I became engrossed in the scene I forgot about my son for a second, and only realised when he came into view. He had started to jump on the trampoline alongside the group. Jumping in a position of risk that someone being hoisted upwards may fall or harm him.

I rushed forward quickly, but was too late. One of the boys had walked forward and taken his hand. He used no words, but led him off the trampoline to the one adjacent, smiled and went back to his group.

I nodded and thanked him, but I got no response.

It took ten minutes for everyone to reach the platform. A cheer at every successful teammate making the ascent. The smiles were infectious, and I felt the pride in their hearts, and clapped in celebration with the crowd.

We were at the trampoline inclusivity session. Most of this group of teenagers had additional needs. They were children who had been labelled as having social challenges. Communication difficulties. Problem children.

But I saw none of that.

I saw a group of young adults who were kind, caring, social, fun and most importantly teammates. Not one of the group had been singled out or excluded. Their aim had been to get every one onto that platform, and they had succeeded.

I watch this group of kids every week. Sometimes they play tag. Sometimes they climb. Sometimes they jump. But I also notice that they are always looking over their shoulder to check they have never left anyone behind.

Because they are a team.

Today Rhys was jumping with two other children from his class. Not one word was being spoken. They just jumped happily alongside. Their challenges ten years behind the group I had been watching.

I hope one day they will be helping each other up onto that platform. I hope their future is as exciting as what I have just watched. Because they are already smashing down barriers which have been putting before them. They are changing the world in their own special way.

Who knows what will happen in time!